Saturday, October 17, 2020 | 10:00am - 1:00pm (EST)

About the Lupus Research Alliance and Lupus Therapeutics

The Lupus Research Alliance is the largest non-governmental, non-profit funder of lupus research worldwide. The organization aims to transform treatment while advancing toward a cure by funding the most innovative lupus research, fostering diverse scientific talent, stimulating collaborations and driving discovery toward better diagnostics, improved treatments and ultimately a cure for lupus. Because the Lupus Research Alliance’s Board of Directors fund all administrative and fundraising costs, 100% of all donations goes to support lupus research programs.

Lupus Therapeutics, an affiliate of the Lupus Research Alliance, aims to accelerate drug discovery and diagnostic innovation for all patients living with lupus. Lupus Therapeutics engages with biotechnology and pharmaceutical industry, as well as other investigators, to bring clinical trials to real people living with lupus. The organization aims to place the patient voice at the center of strategic planning with the most creative clinicians and scientists in the world.

Lupus Clinical Trials Redefined

 New drug development depends on participants with lupus. But to take part, people must be informed about the types of study opportunities, what’s involved, and how to join. The Lupus Research Alliance and Lupus Therapeutics have developed a broad clinical research education program “Redefining Lupus Trials: You Make the Difference.” This includes a national survey and a webcast on clinical trials amid COVID-19 and beyond. Next up is our first Lupus Clinical Trials Virtual Fair -- October 17 with participating medical centers primarily located in the U.S. East/Central region. The Fair will feature a panel including researchers and a person with lupus who has been in a trial. In the exhibit area, visitors can talk to trial site staff about the specific trials they are conducting.


 10:00 am 

Welcome; Virtual event and Exhibit Hall opens

 11:00 am 

Panel Discussion in Auditorium

  • Moderator: Albert T. Roy — Executive Director, Lupus Therapeutics, LLC
  • S. Sam Lim, MD — Professor of Epidemiology at Emory University; Director of the Grady Lupus Clinic at Grady Memorial Hospital; Steering Committee member for Lupus Therapeutics’ Lupus Clinical Investigators Network (LuCIN)
  • Charmayne Dunlop-Thomas, MS, MPH — Associate Director of Research Projects, Emory University
  • Stacey Kennedy-Connor — Lupus representative, member of the Patient Advocates for Lupus Studies at Lupus Therapeutics
  • Kenneth A. Getz, MBA — Deputy Director & Professor, Tufts University School of Medicine; Founder and Board Chair of the Center for Information & Study on Clinical Research (CISCRP)
  • Lorena Kuri — Head of Diversity Strategy, Bristol Myers Squibb (BMS)
 12:00 pm 

Return to Exhibit Hall


Closing; Live Chat in Exhibit Hall ends

Exhibit Hall Booths

    • Antidote
    • CISCRP
    • Columbia University Irving Medical Center
    • Hospital for Special Surgery
    • Medical University of South Carolina Division of Rheumatology
    • National Kidney Foundation
    • New York University Langone Health
    • Northwell Health
    • Northwestern University
    • Rush University Medical Center
    • The Feinstein Institute for Medical Research
    • The Lupus Initiative/American College of Rheumatology
    • University of Colorado Denver
    • University of Pennsylvania
    • University of Rochester
    • University of Washington
    • Yale School of Medicine

Confirmed as of 10/9/20